Life is far from normal at present – it is challenging trying to not make everything about my daughter’s struggle with Anorexia. We are attending medical appointments at least twice a week in a desperate attempt to keep her out of hospital. Normally an ill child should be getting well in hospital but in the case of this illness that could be the worst thing. It could mean being sent to a secure unit away from home with limited family visits and fed forcibly under sedation without taking into account my daughter’s strict vegan diet.
We had to attend a session where the family had to go through the motions of having a meal that she would not eat and became very distressed. The family based treatment is to make insist that the child eats 3 normal meals a day plus 3 snacks when they want to eat nothing at all. I am finding it frustrating that counselling is not recommended until weight is restored so we are unable to break the cycle of becoming increasingly unwell and the illness means that she cannot think rationally. She is freaked out every time she is told her weight and feels compelled to eat even less and exercise even more.
It is emotionally exhausting watching a child suffer and knowing that the only medicine is food which she cannot allow herself to eat. She is suffering from fatigue, hypothermia, low blood sugar, low blood pressure, low white blood cell count and it is amazing that she is even able to function at all.
I have been trying to make soup that she will eat and it is a triumph if she will eat a few teaspoons. My older daughter and I have been trying to distract her with activities including making a dress from an old shirt, wax food wraps, artwork and even patchwork. We have to approach each new day as a new one and hope that our strong will can break the deadlock.
Life is a long way from normal – everything is on hold. My family and friends worry that they cannot do anything to help but just hearing that they care is enough to give me the strength and courage to keep going. I simply have no alternative.